The Hypertrophic Cardiomyopathy Consortium is a network of investigators focused on the research, diagnosis, and treatment of HCM. The Consortium includes investigators from Johns Hopkins University and several other institutions throughout the world.
The consortium seeks to define a large cohort in which all patients have undergone a thorough clinical evaluation. This typically includes history and physical examination by a cardiologist, 12-lead ECG, echocardiography including advanced techniques such as tissue Doppler and strain imaging. Additionally, Holter monitoring, signal-averaged ECG, cardiac MRI, electrophysiological testing, coronary angiograms and genetic data may be available for a large number of patients.
The consortium includes over 6000 patients with a confirmed diagnosis of HCM.
